{"version":"1.0","provider_name":"Programme de recherche proches aidants handicaps","provider_url":"https:\/\/blog.ube.fr\/recherches-shs-proches-aidants-handicaps","author_name":"Aurore PELISSIER","author_url":"https:\/\/blog.ube.fr\/recherches-shs-proches-aidants-handicaps\/author\/au9364pe\/","title":"Le projet GENaccess - Programme de recherche proches aidants handicaps","type":"rich","width":600,"height":338,"html":"<blockquote class=\"wp-embedded-content\" data-secret=\"3nWsAAGQqi\"><a href=\"https:\/\/blog.ube.fr\/recherches-shs-proches-aidants-handicaps\/2023\/01\/13\/le-projet-genaccess\/\">Le projet GENaccess<\/a><\/blockquote><iframe sandbox=\"allow-scripts\" security=\"restricted\" src=\"https:\/\/blog.ube.fr\/recherches-shs-proches-aidants-handicaps\/2023\/01\/13\/le-projet-genaccess\/embed\/#?secret=3nWsAAGQqi\" width=\"600\" height=\"338\" title=\"\u00ab\u00a0Le projet GENaccess\u00a0\u00bb &#8212; Programme de recherche proches aidants handicaps\" data-secret=\"3nWsAAGQqi\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\" class=\"wp-embedded-content\"><\/iframe><script type=\"text\/javascript\">\n\/* <![CDATA[ *\/\n\/*! This file is auto-generated *\/\n!function(d,l){\"use strict\";l.querySelector&&d.addEventListener&&\"undefined\"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!\/[^a-zA-Z0-9]\/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret=\"'+t.secret+'\"]'),o=l.querySelectorAll('blockquote[data-secret=\"'+t.secret+'\"]'),c=new RegExp(\"^https?:$\",\"i\"),i=0;i<o.length;i++)o[i].style.display=\"none\";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute(\"style\"),\"height\"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):\"link\"===t.message&&(r=new URL(s.getAttribute(\"src\")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener(\"message\",d.wp.receiveEmbedMessage,!1),l.addEventListener(\"DOMContentLoaded\",function(){for(var e,t,s=l.querySelectorAll(\"iframe.wp-embedded-content\"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute(\"data-secret\"))||(t=Math.random().toString(36).substring(2,12),e.src+=\"#?secret=\"+t,e.setAttribute(\"data-secret\",t)),e.contentWindow.postMessage({message:\"ready\",secret:t},\"*\")},!1)))}(window,document);\n\/\/# sourceURL=https:\/\/blog.ube.fr\/recherches-shs-proches-aidants-handicaps\/wp-includes\/js\/wp-embed.min.js\n\/* ]]> *\/\n<\/script>\n","description":"Une recherche en \u00e9conomie sur l\u2019errance diagnostique dans les maladies rares pour mieux comprendre les facteurs favorisant ou contraignant l\u2019acc\u00e8s \u00e0 une expertise g\u00e9n\u00e9tique en Bourgogne. Contexte Pour les patients suspect\u00e9s d\u2019\u00eatre atteint de maladie rare, il faut en moyenne 1,5 an pour poser un diagnostic. Pour un quart des patients, cette dur\u00e9e est de&hellip;Voir plus &rarr;"}